Medical Education Opp for Doctors

Apple and booksSorry for my radio silence recently – I’m pleased to say I’ve been consumed with recovering from busting not one, but TWO huge (for me) moves recently I will share more about in another post soon. (They both involve bridges, stay tuned!)

Meanwhile, I just can’t help sharing sooner than later the newly announced FIRST EVER one-day Physicians Conference on EDS is to be held Monday, September 15, 2014 at the newly opened EDNF Center for Research and Clinical Care at the Greater Baltimore Medical Center in Baltimore, Maryland, USA.

But it gets better – unlike yours truly who hauled her broken body across the country for the 2013 EDNF Learning Conference for patients in Rhode Island, your doctor doesn’t even have to travel! They can attend via live webinar, from the comfort of their home or office.  (No fair, smile). AND they will be offering CME’s (continuing medical education units) for this also. (I’m sure that’s meant as an incentive to get our doctors to attend this first ever PHYSICIAN Conference on EDS).

NB this really is for PHYSICIANS only. (Finally! The first such opp!) Patients will still need to wait for next year’s annual 2015 EDNF Learning Conference which is now slated to also be held in Baltimore. And no, that cannot be attended via webinar – it is a multi-session, multi-day event. Besides, I can’t recommend making the effort to attend more highly. You learn SO much more in person and make lifelong friends. (And trust me, plenty are in wheelchairs and braces, like I was, using schleppers and scooters as needed). Besides, they always do make most of the sessions slides available after wards for those who cannot. (If I can do it last year in my broken body, you can do it! Start fundraising and saving your shekels now.)

This marks a new chapter in increasing awareness and improving medical care and diagnostics for the millions with Ehlers-Danlos Syndrome everywhere. It’s one thing for patients to try to educate their doctors. It’s SO much better for them to hear it from their esteemed colleagues themselves.  And the presenters at this Physicians Conference are some of the very top EDS experts and doctors in the world.

I want to personally thank EVERYONE who made this possible through hard work and donations to the EDNF through the years. And the dedication, time and planning on the part of Dr. Claire Francomano and her colleagues without whom this wouldn’t be possible. image of medical cross and staff

This is huge, you guys. I know, I know, too many of you have NO educated doctors in your area. But…please be patient, stay strong, keep educating as best you can, and point ALL your doctors and their friends to this first ever educational opp! Finally, they can stop taking OUR word for everything! (We really do suffer as much as I’ve described all over this website, and more, sigh.)

Thanks everyone!

Jandroid 3.0 (better, faster, stronger than in 2012)


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2 Responses to Medical Education Opp for Doctors

  1. simplyfizz says:

    Reblogged this on simplyfizz and commented:
    I suffer with severe now classified terminally Ill.. Eds, veds, and pots and ginmd and my list is endless.
    Life threatening was and is my situation since 2007.
    I’m known a scientific / medical miracle that I’ve outlasted my given expiry times from 2008 onwards.
    I cannot express how hard it’s been to educate all those from professionals to so called family and friends, colleagues and off course myself.
    Conferences like these are held here in UK too, but no where near me, impossible to get to and no extra finance to purchase tickets.
    I hope a resolve is achieved everywhere where everyone affected can get to these much needed conferences without breaking the bank.

    • Jan Groh says:

      Thanks for reblogging this simplyfizz. That said, NB it is for our DOCTORS, not us patients (and friends).The EDNF has held an annual Learning Conference on EDS in the US for patients and families for years now. (I made it to my first one last year in Rhode Island, USA 2013, amazing experience and worth the arduous travel for me). This one for doctors specificially is a first of its kind in the US! That’s why they are offering Continuing Medical Education units (CME’s), and remote attendance via webinar – they know how hard it is to get our doctors to attend such a thing! (And it’s only one session at a time, making video possible – the main Learning conference for patients is multiple simultaneous sessinos making that impractical). I just begged my doctor to attend and even offered chocolate. 🙂 Here’s to hoping. Any doctor can attend – from anywhere in the world by the way. Win!

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