I’m thrilled to share that my short “story of strength” was included in the first edition anthology of Our Stories of Strength: Living With Ehlers-Danlos Syndrome that came out on Kindle May 8th, 2015 for EDS Awareness Month!
And as of June 1, it is now also in Print on Amazon too!
It is co-edited and curated by Mysti Reutlinger and Kendra Neilsen Myles, fellow EDS patients and survivors who met in 2014 on Twitter and found a mutual kinship in their positive coping techniques and styles, leading them to collaborate and form Our SOS LLC, and hatch the Stories of Strength (TM) anthology series to solicit many individual stories from others and hatch this wonderful first collection of several to come!
I also met them on Twitter as @H2OhTwist where they soon learned I was also working on a book of my own and seemed to appreciate my positive and educationally focused Twitter stream about EDS.
Kendra, aka @SFHEDS and @EDSPatientSol is truly my top retweeter, big time! And has a great inspiring blog about staying strong despite EDS. Not to mention both having great positive content of their own in their streams which I follow closely.
So I was honored to be personally asked to submit a short story for this first edition not long after. We were all very excited to see it produced in time for Ehlers-Danlos Syndrome Awareness Month in May 2015. I’m really impressed with all of their hard work, as I know they both have their own EDS-based challenges and busy lives and getting it out in May 2015 was far from a slam dunk. (Oh if you only knew what we endure behind the scenes sometimes!)
Mysti (@MystiReutlinger) herself has an individual book out already called Journey to Health: A Holistic Approach to Ehlers-Danlos Syndrome that I was able to read recently and found quite inspiring for both her personal diagnostic and survival story, and the great nutritional and healing wisdom and insight she provided. I had been slowly coming to very similar conclusions about diet and exercise the last three years “post storm” with EDS myself which I was going to share in the “What to do about it” part of my book, and was happy to see Mysti beat me to it.
It is very well written and uplifting and inspiring as well as concise and quick to read. So I’m plenty excited to see this collaborative work from she and Kendra! Not to mention being published for my first time, ahem. And getting to read many other incredible stories of strength besides my own. (I’m so not alone nor rare in this experience as you’ll soon see if you haven’t already.) I hope you’ll order a copy for yourself and maybe even for your doctor!
For immediate release from Our SOS Media LLC: