Category Archives: About EDS

Posts about EDS and when to suspect it.

You Know You Have Ehlers-Danlos Syndrome When

… you haven’t fallen, but you still can’t get up.

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I don’t have low pain tolerance…

… I have a low pain threshold, and feel loads of pain. I have very high pain tolerance. I just have much more pain than most.

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Birds of a Feather

Birds of a feather flock together. And although we like to call ourselves medical “zebras”, for the purposes of this discussion I’m calling us birds to honor the age-old adage. Because we definitely flock and hang together whether we realize … Continue reading

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When Else to Suspect Ehlers-Danlos Syndrome

Author’s note March 16, 2017: Since the brand new updated criteria and nosology for all forms of the now plural Ehlers-Danlos Syndromes (13 of them) and the brand new category of Hypermobility Spectrum Disorders JUST came out 24 hours ago, please … Continue reading

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Our Stories of Strength coming out May 2015

I’m thrilled to share that my short “story of strength” was included in the first edition anthology of Our Stories of Strength: Living With Ehlers-Danlos Syndrome that came out on Kindle May 8th, 2015 for EDS Awareness Month! And as … Continue reading

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MCAD linked to Autism Spectrum April 2015

I’m late to the World Autism Awareness Day party which was yesterday, April 2, 2015 as I type this. (Though not late for Autism Awareness Month, which is April, by the way.) But… the good news is, while I failed … Continue reading

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Peanut Takes Her Last Nap March 2015

It is with a VERY heavy heart that I share the sad news that my beloved and sweet therapy rattie Peanut has moved on to cross to Rainbow Bridge suddenly last Friday March 20, 2015. I was in the middle … Continue reading

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5 Things You Should Know About Chronic Pain

I’m slowly cooking up my own “Pain and EDS” post, but meanwhile, I felt this one by fellow blogger and sufferer Zyp Czyk worth sharing sooner than later.

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Calling All Geneticists

Wow, who would have thunk it? Careful what you ask for –  you may get it: we seem to be raising enough collective awareness finally through regular and social media that more people are suspecting they may have Ehlers-Danlos Syndrome … Continue reading

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Fatigue and EDS

Those who have any form of Ehlers-Danlos Syndrome (EDS) like me (with HEDS) can tell you there is definitely some fatigue involved from the strain on weak muscles, torn tendons and ligaments and all forms of our connective tissue. Those of … Continue reading

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