Although she is officially busy recovering from being “invaded by body snatchers” in the form of an Ehlers-Danlos Syndrome onset storm back in 2012 that left her wheelchair bound for six months, Jan Groh is starting to get around on foot, and is available to speak on Ehlers-Danlos Syndrome and its many related comorbidities to interested groups with sufficient advance notice.

She also welcomes requests for information you’d like to see on this site, bearing in mind it is still in early development stages as of June 2014.

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