Tag Archives: chronic pain

What is Normal

I know, “what is normal” is a really loaded question or statement, but I’m not intending it to be. I’m just trying to help highlight how many ways we have “normalized” the milder manifestations of at least the most common … Continue reading

Posted in About EDS | Tagged , , , , , , , , , , | 2 Comments

Finding Your MCAD Triggers

As many of you know, we’re unfortunately finding Mast Cell Activation Diseases aka “MCAD” of all kinds (forms of masto or the newly recognized MCAS) to be relatively common in Ehlers-Danlos patients, which is why I’ve written about them at … Continue reading

Posted in About MCAD, Solutions | Tagged , , , , , , , , , , , , , , , , , , , | Leave a comment

50,000 Shades of Grey

Sorry to disappoint you erotica fans, but this post is not going to be nearly as sexy as the recently viral romance novel whose title it is reminiscent of. But I hope having lured you in, it will keep your … Continue reading

Posted in About EDS | Tagged , , , , , , , , , , , , , | 16 Comments

Anxiety and EDS

I’m writing this post while listening to the replay of The Anxiety Summit produced by Food and Mood Gal Trudy Scott this week (June 16, 2016). And I am not surprised to find myself falling down yet another rabbit-hole, with … Continue reading

Posted in About EDS, Uncategorized | Tagged , , , , , , , , , , , | 7 Comments

Heads up change is coming May 2016

Update February 7, 2017: Via The Ehlers-Danlos Society (aka “The EDS”) on Facebook the full new EDS nosology will be published on March 15, 2017. Meanwhile, some preliminary documents have been shared ahead of time, including one that talks about … Continue reading

Posted in About EDS | Tagged , , , , , , , , , | 8 Comments

The Chronic Constellation

Fasten your seatbelts and settle in with a snack again, you’re in for another long ride, smile. (I’ll try not to make it too bumpy!) Hopefully you’ve heard of “The Trifecta” by now – that is, the relatively common trio … Continue reading

Posted in About EDS, About MCAD | Tagged , , , , , , , , , , , , , , , , , , , | 22 Comments

Depression and EDS and MCAD

I really need to include anxiety in this post as well, as the two – depression and anxiety – seem to go very hand-in-hand for a large number of us. No surprise, this is true for the commonly comorbid autism … Continue reading

Posted in About MCAD, Solutions | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 12 Comments

Trust – and heal – your gut!

You may have noticed I don’t give much dietary advice here. In fact, to this point, I’ve given virtually none. And this is for a very good reason: just like medications and just about everything else with Ehlers-Danlos Syndrome with … Continue reading

Posted in About EDS, Solutions | Tagged , , , , , , , , , , , , , , , | 3 Comments

I don’t have low pain tolerance…

… I have a low pain threshold, and feel loads of pain. I have very high pain tolerance. I just have much more pain than most.

Posted in About EDS, Quotes | Tagged , , , , , , , , | 1 Comment

Birds of a Feather

Birds of a feather flock together. And although we like to call ourselves medical “zebras”, for the purposes of this discussion I’m calling us birds to honor the age-old adage. Because we definitely flock and hang together whether we realize … Continue reading

Posted in About EDS | Tagged , , , , , , , , , , , , , , , , , | 4 Comments