Tag Archives: hypermobility syndrome

Handling Change

I’m writing this post ahead of what is likely to be a day of great change for many if not all in the greater Ehlers-Danlos community, if not the world (whether they all know it or not, smile). It is … Continue reading

Posted in About EDS | Tagged , , , , , , , , , , , , | 3 Comments

Trust – and heal – your gut!

You may have noticed I don’t give much dietary advice here. In fact, to this point, I’ve given virtually none. And this is for a very good reason: just like medications and just about everything else with Ehlers-Danlos Syndrome with … Continue reading

Posted in About EDS, Solutions | Tagged , , , , , , , , , , , , , , , | 3 Comments

When Else to Suspect Ehlers-Danlos Syndrome

Author’s note March 16, 2017: Since the brand new updated criteria and nosology for all forms of the now plural Ehlers-Danlos Syndromes (13 of them) and the brand new category of Hypermobility Spectrum Disorders JUST came out 24 hours ago, please … Continue reading

Posted in About EDS | Tagged , , , , , , , , , , , , , , , , , | 58 Comments

Our Stories of Strength coming out May 2015

I’m thrilled to share that my short “story of strength” was included in the first edition anthology of Our Stories of Strength: Living With Ehlers-Danlos Syndrome that came out on Kindle May 8th, 2015 for EDS Awareness Month! And as … Continue reading

Posted in About EDS | Tagged , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

Solve for both X and Y

So you’ve finally gotten a diagnosis, and some validation (hopefully!) Now what do you do about it? Sadly, there’s no single remedy or path to recovery (at whatever level) for everyone sorry, due to the systemic nature and extremely wide variation in expression of … Continue reading

Posted in About EDS, Solutions | Tagged , , , , , , , , , , , , | 4 Comments

Personal Independence Day

As everyone knows we just celebrated Independence Day in the US this past week (July 4, 2014). What you may not know is that I also celebrated some personal independence that I’ve newly regained thanks to hundreds of hours of hard … Continue reading

Posted in About EDS | Tagged , , , , , , , , , , , , , , | 1 Comment

May is EDS Awareness Month

Every chronic illness and issue has an awareness month, and May happens to be the month for Ehlers-Danlos Syndromes Awareness. So prepare to be beat about the ears and eyes with lots of awareness tweets, pins and Facebook posts by … Continue reading

Posted in About EDS | Tagged , , , , , , , , , , , , , , , , , , | 3 Comments