Tag Archives: MCAD

Seeking zebras of color

I don’t know how this doesn’t get more press or notice, but it’s become increasingly and glaringly obvious to me that all of the awareness raising around EDS, MCAD and “friends” (what I call the Chronic Constellation here) is almost … Continue reading

Posted in About EDS | Tagged , , , , , , , , , | 1 Comment

Handling Change

I’m writing this post ahead of what is likely to be a day of great change for many if not all in the greater Ehlers-Danlos community, if not the world (whether they all know it or not, smile). It is … Continue reading

Posted in About EDS | Tagged , , , , , , , , , , , , | 3 Comments

Wherefor art thou Dysautonomia?

“Homeo(stasis)… oh homeo(stasis)… wherefor out thou dysautonomia?” to mangle a phrase with apologies to all you brilliant Shakespeare scholars. And mix some medical metaphors to boot. Anyone who’s been exploring either Ehlers-Danlos Syndrome or the highly comorbid Mast Cell Activation … Continue reading

Posted in Dysautonomia | Tagged , , , , , , , , , , , , , , , , , , , , | 2 Comments

Finding Your MCAD Triggers

As many of you know, we’re unfortunately finding Mast Cell Activation Diseases aka “MCAD” of all kinds (forms of masto or the newly recognized MCAS) to be relatively common in Ehlers-Danlos patients, which is why I’ve written about them at … Continue reading

Posted in About MCAD, Solutions | Tagged , , , , , , , , , , , , , , , , , , , | Leave a comment

Reframing autism and more

I know, you came┬áhere originally to learn about a connective tissue disorder called Ehlers-Danlos Syndrome. I originally came here to write about a connective tissue disorder called Ehlers-Danlos Syndrome after experiencing a massive onset “cascade” or storm of symptoms that … Continue reading

Posted in About EDS, Autism | Tagged , , , , , , , , , , , , , | 9 Comments

Depression and EDS and MCAD

I really need to include anxiety in this post as well, as the two – depression and anxiety – seem to go very hand-in-hand for a large number of us. No surprise, this is true for the commonly comorbid autism … Continue reading

Posted in About MCAD, Solutions | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 12 Comments

Trust – and heal – your gut!

You may have noticed I don’t give much dietary advice here. In fact, to this point, I’ve given virtually none. And this is for a very good reason: just like medications and just about everything else with Ehlers-Danlos Syndrome with … Continue reading

Posted in About EDS, Solutions | Tagged , , , , , , , , , , , , , , , | 3 Comments

Introduction to MCAD June 2015

As the current coordinator for the PNW Chapter of The Mastocytosis Society covering the greater Pacific Northwestern region of the US plus a few neighboring Canadians, I’ve been eager to help educate both patients and doctors as much as possible … Continue reading

Posted in About MCAD | Tagged , , , , , , , , , , , , , , , , , , | Leave a comment

MCAD linked to Autism Spectrum April 2015

I’m late to the World Autism Awareness Day party which was yesterday, April 2, 2015 as I type this. (Though not late for Autism Awareness Month, which is April, by the way.) But… the good news is, while I failed … Continue reading

Posted in About EDS, Solutions | Tagged , , , , , , , , , , , , , , , , | Leave a comment

Flares happen

This post is brought to you by Peanut, my faithful therapy rattie and napping partner as I find myself going splat a lot more with my 2nd worst flare since my initial 2012 onset “storm” or “cascade” that first got … Continue reading

Posted in About EDS | Tagged , , , , , , , , , , , , , , , | 3 Comments