Tag Archives: pain

You Know You Have Ehlers-Danlos Syndrome When

… you haven’t fallen, but you still can’t get up.

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I don’t have low pain tolerance…

… I have a low pain threshold, and feel loads of pain. I have very high pain tolerance. I just have much more pain than most.

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Introduction to MCAD June 2015

As the current coordinator for the PNW Chapter of The Mastocytosis Society covering the greater Pacific Northwestern region of the US plus a few neighboring Canadians, I’ve been eager to help educate both patients and doctors as much as possible … Continue reading

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5 Things You Should Know About Chronic Pain

I’m slowly cooking up my own “Pain and EDS” post, but meanwhile, I felt this one by fellow blogger and sufferer Zyp Czyk worth sharing sooner than later.

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Calling All Geneticists

Wow, who would have thunk it? Careful what you ask for –  you may get it: we seem to be raising enough collective awareness finally through regular and social media that more people are suspecting they may have Ehlers-Danlos Syndrome … Continue reading

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Fatigue and EDS

Those who have any form of Ehlers-Danlos Syndrome (EDS) like me (with HEDS) can tell you there is definitely some fatigue involved from the strain on weak muscles, torn tendons and ligaments and all forms of our connective tissue. Those of … Continue reading

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Flares happen

This post is brought to you by Peanut, my faithful therapy rattie and napping partner as I find myself going splat a lot more with my 2nd worst flare since my initial 2012 onset “storm” or “cascade” that first got … Continue reading

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January is Thyroid Awareness Month

January is Thyroid Awareness month, and I bring this to your attention at this late date because virtually everyone with any form of Ehlers-Danlos Syndrome seems to also show signs of SOME form of thyroid imbalance, but quite frequently hypothyroidism … Continue reading

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Of Christmas Ghosts and Spoons

I’m borrowing liberally from Charles Dickens’ A Christmas Carol for this post. This December 2014 I’m thrilled to find myself ever so slowly climbing back out of the hole I fell in when a metaphorical “bomb” went off in my life three years ago and … Continue reading

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Your Pain is Your Fault: What Women Are Told by Their Doctors

Sadly all too true, too many women are dismissed as either “just depressed” or histrionic despite being in very real pain. (Much of it invisible on scans in those with Ehlers-Danlos). See the shocking results of a National Pain Report … Continue reading

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