Tag Archives: zebras

What is Normal

I know, “what is normal” is a really loaded question or statement, but I’m not intending it to be. I’m just trying to help highlight how many ways we have “normalized” the milder manifestations of at least the most common … Continue reading

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The Chronic Constellation

Fasten your seatbelts and settle in with a snack again, you’re in for another long ride, smile. (I’ll try not to make it too bumpy!) Hopefully you’ve heard of “The Trifecta” by now – that is, the relatively common trio … Continue reading

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Depression and EDS and MCAD

I really need to include anxiety in this post as well, as the two – depression and anxiety – seem to go very hand-in-hand for a large number of us. No surprise, this is true for the commonly comorbid autism … Continue reading

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I don’t have low pain tolerance…

… I have a low pain threshold, and feel loads of pain. I have very high pain tolerance. I just have much more pain than most.

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Our Stories of Strength coming out May 2015

I’m thrilled to share that my short “story of strength” was included in the first edition anthology of Our Stories of Strength: Living With Ehlers-Danlos Syndrome that came out on Kindle May 8th, 2015 for EDS Awareness Month! And as … Continue reading

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Denial is not a river in Egypt

I’ve found myself saying this phrase a lot throughout my life. I first learned it in recovery circles – Adult Children of Alcoholics as a teenager, initially. Followed by Codependents Anonymous later. And more recently I’ve been saying it in regard … Continue reading

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But I’m a horse!

If you’re not aware by now, you sure should be that May is Ehlers-Danlos Syndrome Awareness Month. And you should also be aware that the zebra is our rare disease mascot. But, in case you weren’t aware, I’ll refresh the … Continue reading

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