ContactAlthough she is officially busy recovering from being “invaded by body snatchers” in the form of an Ehlers-Danlos Syndrome onset storm back in 2012 that left her unable to walk for nine months, Jan Groh is starting to get around on foot again, and is available to speak on Ehlers-Danlos Syndrome and its many related comorbidities to interested groups with sufficient advance notice.

She also welcomes requests for information you’d like to see on this site and deeply appreciates notification of any broken links!