Related Research

I was collecting links to Ehlers-Danlos Syndrome related research here starting in 2019, including research into our many comorbidities.

But I just (February 2020) came across another resource who is doing a better (more automated) job than I, so I’m going to point you all there now:

Ehlers-Danlos Treatment Report (first seen in 2020 via the NYC EDS group).

I also found the search page for studies of Connective Tissue Disease at the NIH too showing all results there, including closed trials. Via here.

Last updated 2/11/20.

Organizations also tracking and funding some research include:

• EDS Network C.A.R.E.S.
• EDS Awareness (aka Chronic Pain Partners) based in Ohio, USA
• The Murray-Wood Foundation
• The Ehlers-Danlos Society (The EDS, international scope successor to the EDNF)