Mental Health Resources

Mental Health Resources
How is your… mental health?

We find all manner and number of psychiatric and mental health challenges and diagnoses commonly co-occurring with Ehlers-Danlos Syndrome, especially depression and anxiety.

Unfortunately, too many doctors immediately stop listening to our complaints of very real physical pain and other trouble once these are identified. (Some of our family members do too.)

But that doesn’t stop them from deserving attention and treatment and support, even if we are diagnosed with a connective tissue disorder as well.

ETA 2/22/21: I’m finding a LOT of complex PTSD, aka CPTSD (alternatively Relational or Interpersonal Trauma) common in the community. This seems to be common among neurodivergent people, especially autistics. I’m adding a few links targeting that especially too as I’m finding the role it plays in my own life now finally. I really like this particular broadcast of Think Out Loud by Dave Miller on OPB in October 2022 exploring just how helpful trauma informed teachers and doctors can be.

And I’m recognizing the combination or co-occurrence of ADHD and OCD, is semi-common among us. (Could explain hoarding for some of us along with the association between OCD and hypermobility noted since 2013.) As well as alexithymia, or delayed emotional recognition and processing.

ETA 3/1/22: I now highly recommend the course “Inside Autism” offered by Kieran Rose here:

Here are a few resources to that end. However, do not send me any unsolicited links, I will simply delete those requests. I am quite capable (as is my audience) of finding all I need by searching thank you. I’m not here to signal boost your site for ad clicks. (For some reason this topic is a honeypot for those seeking to do so.) Last updated February 1, 2023.

Related Support Sites and Blogs

EDS Resources
A precious spoon!

Journal Articles on the Comorbidity of Hypermobility, MCD and Psychiatric Issues

The following may include some duplication of the above. I pulled it from the relevant subsection on my MCAD Resources page:

Mental Health and Mast Cell Activation Diseases (Masto and MCAS)

Send other suggestions and inquiries to us at or via the contact form in the menu thanks.

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