Selected Posts and FAQs

I’m adding this page so as to have a place to refer to all of my top most selected posts in one place. These are blog posts that I refer to the most, and I realized the other day that I tweet them out regularly, but, not everyone is on Twitter! So I’m calling them “Selected Posts” here, since I can’t “pin” them any other way. They are also my top most FAQs.

DOCTORS PLEASE SEE THIS PAGE <–linked FOR URGENT CASES/EMERGENCY INFO TY.

If my site helps you in any way at all, would you please consider supporting me a little too? Thanks!

Bonus: Dental Freezing (Numbing) Formula that works great for many patients with CTDs:

1/2 mepiva w/out epi, 1 art w/epi 1:100,000

“art” stands for “articaine” *

*articaine and bruvidicaine has worked well for some others
We need low to no epi mixed in or it goes out too fast. (Reference: dental numbing, dental freezing)

Selected Posts and FAQs

• The Hypermobile Red Herring – how measuring hypermobility is misleading as a sign of EDS/HSD
• Peeling the Diagnostic Onion – how we often stop short after diagnosing our most common co-occurring conditions
• But I’m a Horse Redux 2019 – how we feel strongly that EDS is STILL not rare, just rarely diagnosed! (And yes, even post-2017.)
• Avoid Cipro! – why you should avoid Cipro and the other fluoroquinolone antibiotics, especially if you’re hypermobile
• Weight and EDS and MCAD – how our weight can vary GREATLY, in either direction, and often for reasons we cannot easily control if at all, including highly co-occurring lipedema.
• Wherefor art thou – Dysautonomia? – how we are so prone to all forms of dysautonomia

I will continue to add to this list over time. I also need to drum up some kind of fun image to go with the page. Last updated June 16, 2022.

And, I’m now (April 2022) going to add several sections below relating to our major co-occurring conditions with a mix of both static pages and blog posts to also help folks better get up to speed without having to hunt through my site. Sort of like an FAQ section, I just realized! (I’m constantly answering these questions and more on Twitter with the same posts over and over so… tada.)

Suspecting HSD or EDS

• When to suspect EDS (or HSD)
• When Else to suspect an EDS or HSD
• What are the Ehlers-Danlos syndromes?
• What are the (new since 2017) Hypermobility Spectrum Disorders?
• How do I go about getting diagnosed with either an EDS or HSD?
• Fatigue and EDS
• Sleep and EDS and MCAD
• Anxiety and EDS
• Depression and EDS
• EDS Resources

Suspecting MCAD of all types

• What is MCAD (all forms)
• When to suspect MCAD (all forms)
• Finding your MCAD triggers (when possible)
• MCAD Resources

Dysautonomia and EDS and MCAD (“The Trifecta”)

• Wherefore art thou Dysautonomia?
• What is POTS
• What is Hyperadrenergic POTS (HyperPOTS)
• What is Familial Dysautonomia aka Riley-Day Syndrome (not the same as “POTS in the family”)
• Dysautonomia Resources

I will continue to add to this page as time and energy allows. Stay tuned for updates. Thanks. Jan, 2022.