The information on this website is for educational  purposes only and is not meant to substitute for any form of professional medical advice or health care. Jan Groh has asserted that she is not a licensed health care practitioner of any kind, and is only offering up personal insights and aggregated information on the topics presented from well-vetted medical sources. She has provided original sources whereever possible to this end.

By using this information you agree to hold Jan Groh and all her assigns and heirs harmless from any and all liability arising directly or indirectly from your use of any information contained on this web site. Jan also recommends strongly that you consult with your own preferred medical or health care provider about your own individual health needs and condition before starting or stopping any form of medical therapy, including over the counter nutritional supplementation.

Not only can some supplements interact with your existing medications (if any) in ways you may not be aware of, but many EDS patients are sensitive to even the most common substances and ingredients like corn starch fillers and ascorbic acid (the most common form of Viatmin C) for example, and no single solution or item will work for all.

Listen to your body and operate accordingly in concert with your doctor or health care provider no matter what you read here or anywhere else. If you are wondering if an issue is emergent (urgent, requiring the ER or A&E), do not consult the internet, but seek appropriate immediate medical attention! (Or help from a friend at a minimum! Pain and inflammation often cloud our brains from thinking clearly and making wise decisions.)



No part of this site or blog may be copied or used without express written permission from the author Jan Groh except in the form of re-blogging via WordPress.com with clearcredit to the original author when approved.

You are most welcome to link to this blog without requesting, and share the blog pages in forums as links, just don’t scrape the content and promote it as your own even with attribution. Thank you for honoring the hundreds of hours of personal research and compilation Jan has performed since 2012 to bring you this summarized information.

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Oh TWIST (this site) Uses Google analytics to track the flow of traffic onto the site to see what pages and information are proving the most uses. Google analytics uses “cookies”, small text files they leave on your computer (many sites do this) to help them know if you’ve been to this site before or not. (Helping us count new vs returning users, for example.)

We do not sell share or disclose any of this information in any way. Nor does it include any personally identifying information on you other than your IP address and general location (country, region). We are thrilled to know we’ve been visited from all over the world so far, even as far as Israel and South Africa! (Welcome!)

We welcome subscribers who will be notified of new posts when they are published, and we do not share or sell this information with anyone or a 3rd party for any reason. (You will never be spammed by someone else trying to sell you something.)

It is purely for sending posts from this site. We may offer additional mailing lists to join down the road (e.g. book announcements, sales), to which you may opt in. (This site is opt-in only. If you haven’t signed up for anything, you aren’t subscribed.) This will be made quite clear when and if it happens. We highly value our users privacy and security, much as we do our own.

To your health,

Jan Groh, patient, EDS advocate and author