Celebrities with EDS or HSD

Last updated December 1, 2024

Yes, I know that Sia, Jameela Jamil, Halsey and Lena Dunham all have EDS, among others. Apparently including the late Elvis Presley per this post in 2021. I’ve long suspected he and the late Prince, David Bowie, Marylin Monroe and Michael Jackson myself. (I think MJ was confirmed somewhere?) ETA: Billie Eilish spoke up too via Sky News in January 2023.

Chronic Pain Partners (aka EDS Awareness) started a slowly growing list of Popular People with Ehlers-Danlos Syndrome in 2023 they periodically update. (Yes, it’s more than six now.) Keep an eye on that page for more over time. (It is not comprehensive to be clear, just some of the higher profile folks we know of who are active on social media.)

Hypermobility lends to great vocal ranges and agility, dancing ability, and… chronic pain after all. I wouldn’t be surprised if we continue to slowly uncover more. (Or they uncover themselves, smile. I’m also suspecting Lady Gaga and Celine Dion now too.) And I mean outside of all the acrobats who appear annually on all of the talent shows, smile.

As awareness grows, I think more people will start to recognize how it’s really really not rare, just rarely recognized and diagnosed.