Oh TWIST

Alice in Wonderland doesn’t hold a candle to me – or anyone else with Ehlers-Danlos Syndome of any kind, I’d say. As long, winding and mind-bending as her journey down her rabbit-hole seemed, the journey of an EDS patient has an unending supply of twists and turns that would make even the Cheshire Cat blush.

Careful what you ask for, you just may get it. I struggled through my youth, young adulthood, and even into middle age to keep up, much less “make it”, and to be heard. When suddenly the Universe handed me an oversized microphone in the form of a visible disability that now makes it hard to

Careful what you ask for, you may get it… The story of my life, literally! Stay tuned to find out why I say this.