Tag: fatigue

Flares happen

This post is brought to you by Peanut, my faithful therapy rattie and napping partner as I find myself going splat a lot more with my 2nd worst flare since my initial 2012 onset “storm” or “cascade” that first got me diagnosed with Hypermobile type Ehlers-Danlos Syndrome. I’m strongly suspecting a hormonal cause to this

January is Thyroid Awareness Month

January is Thyroid Awareness month, and I bring this to your attention at this time because a majority of the patietns I’ve met in person with any form of the Ehlers-Danlos Syndromes (or Hypermobility Spectrum Disorders since 2017) seems to also show signs of SOME form of thyroid imbalance. But quite frequently hypothyroidism or under-active

Of Christmas Ghosts and Spoons

I’m borrowing liberally from Charles Dickens’ A Christmas Carol for this post. This December 2014 I’m thrilled to find myself ever so slowly climbing back out of the hole I fell in when a metaphorical “bomb” went off in my life three years ago and I succumbed to my Ehlers-Danlos Syndrome onset cascade in early 2012 leaving me wheelchair bound