Think marathon… not sprint, when trying to diagnose and treat a connective tissue disorder. (Large doses of patience and persistence are in order at all times.) – Jandroid
… I have a low pain threshold, and feel loads of pain. I have very high pain tolerance. I just have much more pain than most.
… you’ve seen ONE Ehlers-Danlos Syndrome patient! It is as individual as fingerprints, no two alike.
You know you have EDS when… you injure in your sleep! – Jandroid
You know you have EDS when you spend all day getting ready for a simple evening outing. – Jandroid
Mast cells are spoon thieves, stealing a bunch every time they activate. – Jandroid
If only pain glowed, we could enlighten the world. – Jandroid 3.0
– the state achieved when one has hit one’s EDS wall and simply MUST go splat and take a nap! – Jandroid 3.0
Careful what you ask for, you may get it… The story of my life, literally! Stay tuned to find out why I say this.