HomeAbout EDSYou know you have EDS when…
July 11, 2014

You know you have EDS when…

You know you have EDS when… you injure in your sleep! – JandroidYou know you have EDS when...

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Jandroid

5 Comments
  1. Jan Groh

    Please add your “signs of EDS” to the comments – I know there are tons more…

    Reply
  2. Jeanne

    You know you have EDS when you break out in bruises and you don’t know why. You know you have EDS ( poor proprioception and poor sensory processing) when you accidentally bump into walls or furniture; or bang your head on a cupboard door…or a car door…break a toe when you accidentally stub your foot on furniture or a treadmill. If a doctor ever decides to x-ray my toes, skull, or feet, he will probably see multiple hairline fractures. I’ve already made jaws drop when I went to see a physical therapist…he was analyzing my gait and seemed surprised that I could walk at all. ;-D

    Reply
  • Jandroid

    Great additions TY! Yup, all of that and so much more, right? ahh… opening medical minds everywhere we go… slowly one by one…

    Reply
  • Debbie

    So I haven’t been diagnosed, but I am sure that I and my pre-teen daughter have it.

    Fibromyalgia
    Spinal Stenosis cervical and lumbar
    Pes Davis
    IBS
    bilateral Carpal Tunnel
    Bilateral Cubital TUNNEL
    torn Shoulder Ligament
    Torn knee ligaments (complete tear of both cruciate and medial collateral in one spectacular fall off my bike
    Uterine fibroids
    Septate uterus
    Incompetent cervix
    Infertility
    Tubal pregnancy
    Uterine hyperplasia
    Menorhagia
    Early onset osteoarthritis (age 14)
    ADD
    Restless Legs Syndrome (affects all limbs and trunk/joints)
    Ataxia
    Sciatica
    Hip spasms
    Loss of Balance and proprioception
    Pots
    High Blood Pressure
    Dercums/Multiple lipomas
    Hernias
    Hemmorhoids
    Depression
    Anxiety
    Severe fatigue
    Exercise intolerance
    Too much eyelid skin
    Keratosis pilarus
    Weak hands/poor grip
    Autism
    Sensory processing disorder
    Circadian rhythm disorder
    Jaw pain
    Flushing
    Allergies/hay fever
    Shortness of breath

    And I’m sure I have forgotten some… 🙁

    Reply
    • Jandroid

      Yup, sure sounds like it, sorry! But hey, at least you know, vs not, and vs wondering why all this stuff is part of your health picture. Welcome to the Great Clan Dumpty of Humpty fame – they can’t put us back together again, right? 😉

      Reply

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