You know you have EDS when you break out in bruises and you donโt know why. You know you have EDS ( poor proprioception and poor sensory processing) when you accidentally bump into walls or furniture; or bang your head on a cupboard door…or a car door…break a toe when you accidentally stub your foot on furniture or a treadmill. If a doctor ever decides to x-ray my toes, skull, or feet, he will probably see multiple hairline fractures. Iโve already made jaws drop when I went to see a physical therapist…he was analyzing my gait and seemed surprised that I could walk at all. ;-D
So I haven’t been diagnosed, but I am sure that I and my pre-teen daughter have it.
Fibromyalgia
Spinal Stenosis cervical and lumbar
Pes Davis
IBS
bilateral Carpal Tunnel
Bilateral Cubital TUNNEL
torn Shoulder Ligament
Torn knee ligaments (complete tear of both cruciate and medial collateral in one spectacular fall off my bike
Uterine fibroids
Septate uterus
Incompetent cervix
Infertility
Tubal pregnancy
Uterine hyperplasia
Menorhagia
Early onset osteoarthritis (age 14)
ADD
Restless Legs Syndrome (affects all limbs and trunk/joints)
Ataxia
Sciatica
Hip spasms
Loss of Balance and proprioception
Pots
High Blood Pressure
Dercums/Multiple lipomas
Hernias
Hemmorhoids
Depression
Anxiety
Severe fatigue
Exercise intolerance
Too much eyelid skin
Keratosis pilarus
Weak hands/poor grip
Autism
Sensory processing disorder
Circadian rhythm disorder
Jaw pain
Flushing
Allergies/hay fever
Shortness of breath
Yup, sure sounds like it, sorry! But hey, at least you know, vs not, and vs wondering why all this stuff is part of your health picture. Welcome to the Great Clan Dumpty of Humpty fame – they can’t put us back together again, right? ๐
Please add your “signs of EDS” to the comments – I know there are tons more…
You know you have EDS when you break out in bruises and you donโt know why. You know you have EDS ( poor proprioception and poor sensory processing) when you accidentally bump into walls or furniture; or bang your head on a cupboard door…or a car door…break a toe when you accidentally stub your foot on furniture or a treadmill. If a doctor ever decides to x-ray my toes, skull, or feet, he will probably see multiple hairline fractures. Iโve already made jaws drop when I went to see a physical therapist…he was analyzing my gait and seemed surprised that I could walk at all. ;-D
Great additions TY! Yup, all of that and so much more, right? ahh… opening medical minds everywhere we go… slowly one by one…
So I haven’t been diagnosed, but I am sure that I and my pre-teen daughter have it.
Fibromyalgia
Spinal Stenosis cervical and lumbar
Pes Davis
IBS
bilateral Carpal Tunnel
Bilateral Cubital TUNNEL
torn Shoulder Ligament
Torn knee ligaments (complete tear of both cruciate and medial collateral in one spectacular fall off my bike
Uterine fibroids
Septate uterus
Incompetent cervix
Infertility
Tubal pregnancy
Uterine hyperplasia
Menorhagia
Early onset osteoarthritis (age 14)
ADD
Restless Legs Syndrome (affects all limbs and trunk/joints)
Ataxia
Sciatica
Hip spasms
Loss of Balance and proprioception
Pots
High Blood Pressure
Dercums/Multiple lipomas
Hernias
Hemmorhoids
Depression
Anxiety
Severe fatigue
Exercise intolerance
Too much eyelid skin
Keratosis pilarus
Weak hands/poor grip
Autism
Sensory processing disorder
Circadian rhythm disorder
Jaw pain
Flushing
Allergies/hay fever
Shortness of breath
And I’m sure I have forgotten some… ๐
Yup, sure sounds like it, sorry! But hey, at least you know, vs not, and vs wondering why all this stuff is part of your health picture. Welcome to the Great Clan Dumpty of Humpty fame – they can’t put us back together again, right? ๐