I’m collecting links to Ehlers-Danlos Syndrome related research, including research into our many comorbidities, especially the most common two: MCAD and POTS. Please share any other research connections you’re aware of so we can help get funding for these great projects and inform each other about what’s already under way to save spoons and resources for all.
It’s unclear to me if Dr. McDonell’s study above is still open or not – the original blog post that led me to it seems to think it’s ongoing, but the NIH page makes it seem closed. Updates welcome in the comments below or to me at firstname.lastname@example.org thanks.
I just found the search page for studies of Connective Tissue Disease at the NIH too showing all results there, including closed trials. Via here.
Please email other research I should add to: email@example.com or share in the comments below.
Organizations also tracking and funding some research include: