Author’s note March 16, 2017: Since the brand new updated criteria and nosology for all forms of the now plural Ehlers-Danlos Syndromes (13 of them as of 2017) and the brand new category of Hypermobility Spectrum Disorders JUST came out, please bear with me as I get my site updated to reflect this. Accordingly, please take
Editor’s note April 2024: I’m behind on updating all my pages to reflect the change in terminology in the mast cell disease world. Mast Cell Diseases, or just MCD (no “A”) is now the official umbrella term for all forms of mast cell diseases, including Mastocytosis (all the forms), HaTS, and MCAS among other less
Boy is this a hot topic! Naturally, since it’s so hard to even get a doctor or doctors to listen to us and recognize our vast collections of symptoms (see last) as a possible systemic condition, we naturally want an easy test to take and be done with this painful journey and have an answer. (Our
