Tag: spoonies

Wherefor art thou Dysautonomia?

“Homeo(stasis)… oh homeo(stasis)… wherefor out thou dysautonomia?” to mangle a phrase with apologies to all you brilliant Shakespeare scholars. And mix some medical metaphors to boot. Anyone who’s been exploring either the Hypermobility Spectrum Disorders (including the forms of EDS) or the highly comorbid Mast Cell Activation Diseases (either masto or the new diagnosis of

The Chronic Constellation

Fasten your seatbelts and settle in with a snack again, you’re in for another long ride, smile. (I’ll try not to make it too bumpy!) Hopefully you’ve heard of “The Trifecta” by now – that is, the relatively common trio of issues we find comorbid in the Ehlers-Danlos community of any form of EDS (or the newly

Depression and EDS and MCAD

I really need to include anxiety in this post as well, as the two – depression and anxiety – seem to go very hand-in-hand for a large number of us. No surprise, this is true for the commonly comorbid autism spectrum as well, coincidentally. Maybe we’re finally onto some of the underlying organic causes of

Our Stories of Strength coming out May 2015

I’m thrilled to share that my short “story of strength” was included in the first edition anthology of Our Stories of Strength: Living With Ehlers-Danlos Syndrome that came out on Kindle May 8th, 2015 for EDS Awareness Month! And as of June 1, it is now also in Print on Amazon too! It is co-edited

2014 in review

The WordPress.com stats helper monkeys prepared a 2014 annual report for my blog. Although I’m no where near as popular and well read (nor prolific) as some of my fellow spoonie bloggers yet (I’m struggling to stay fed and watered still), I’m quite happy with my initial foray this past year, reaching 47 countries and 7100

Of Christmas Ghosts and Spoons

I’m borrowing liberally from Charles Dickens’ A Christmas Carol for this post. This December 2014 I’m thrilled to find myself ever so slowly climbing back out of the hole I fell in when a metaphorical “bomb” went off in my life three years ago and I succumbed to my Ehlers-Danlos Syndrome onset cascade in early 2012 leaving me wheelchair bound

October is Dysautonomia Awareness Month

As you’ve probably guessed by now, we can celebrate one or the other of our comorbities just about every month, including our main awareness month of May – which is also for Fibromyalgia awareness. (September was both Chronic Pain and Chiari Malformation Awareness Month – both very common in the EDS community). Well October is for one