ETA: Yay, we got it working again October 4, 2021, just as Facebook proceeded to go out, lol. Sigh. Thanks Mercury! (It’s in retrograde, for thsoe who care about that kind of thing.) No idea exactly what the problem was, but guessing updating my theme helped. Onward…. ~~~~~~~~~~~~~~~~~Original Post 9/30/21 pm: Having temporary technical difficulties
Or why I think hypermobility is a misleading sign… March 2021 We interrupted our regularly scheduled blogging to bring you a… pandemic. And now we resume… I had a flash of insight upon watching a video of a talk by Jane Simmonds in 2017 (around the 20:30 mark). I’ve been struggling with the word “spectrum”
So I tried to enlist zebras of color to share their stories of trying to get diagnosed with EDS/HSD three years ago in 2017. Because if you haven’t yet noticed, the EDS space is very white. And female. Mostly. Or at least what I’ve encountered so far is. (I’m in over 40 EDS related groups
Edited to add in January 2022: There is no longer a shortage of medical grade N95 masks in the US as we had at the start of this pandemic in 2020 (see next), but, sadly many are reticent (hesitant) to wear them still. Also, KN95’s and K94s are 95 and 94% effective, whence their names.
TW: CW: discussion of gaslighting and abuse and medical PTSD We rolled out an entire new classification and diagnostic scheme for all of the 13 forms of the Ehlers-Danlos syndromes, as well as a brand new category for those who aren’t quite bendy enough called Hypermobility Spectrum Disorders almost two years ago now, in March
Lordy time flies you guys! I was just updating my WordPress theme and all my plugins tonight ahead of upgrading to Gutenberg when I realized I’ve been running this blog for five years now, wow! Happy Birthday to me! Both me and the blog have moved a couple of times since 2014 – hopefully fairly
